India faces growing challenge of Spinal Muscular Atrophy (SMA) with an urgent need for policy and treatment support
Jaipur, October, 2023.Spinal Muscular Atrophy (SMA), a rare genetic disorder that affects the motor neurons in the spinal cord, has emerged as a pressing concern in India, demanding immediate attention from healthcare authorities and policymakers. SMAposes severe challenges to patients, caregivers, and the healthcare system, and its economic burden cannot be ignored.It is heartening to note that Delhi CM Arvind Kejriwal's recent support for a child with SMA has touched the hearts of many. The AAP government's commendable initiative to promote and support a crowdfunding drive, with a strong outpouring of support from the community, exemplifies the power of collective efforts in the fight against SMA.Last year in November, a large group of parents had also approached JK Lon Hospital ...